CHARGE Syndrome Symposium: Interdisciplinary care of a complex rare disease

This full day program, featuring five leading experts on CHARGE syndrome and people with lived experience, provides a unique opportunity to build capacity in Australian health professionals by sharing knowledge, skills and experiences, to improve health outcomes and quality of life for this cohort.

Like many rare and complex diseases, there are recognised knowledge gaps in CHARGE syndrome and a significant need for more research. Long term health supervision and management considerations are often complex, involving monitoring of multiple organ systems and requiring a comprehensive approach across the lifespan from an interdisciplinary team.

This full day program, featuring five leading experts on CHARGE syndrome and people with lived experience, provides a unique opportunity to build capacity in Australian health professionals by sharing knowledge, skills and experiences, to improve health outcomes and quality of life for this cohort.

This inaugural one-day event is proudly hosted by CHARGE Syndrome Australasia, with the support of Randwick Health & Innovation Precinct. CHARGE Syndrome Australasia, the peak body, is a voluntary, non-profit organisation, run by people with lived experience. We provide information, resources and support to families and raise awareness in the community.

More information and registration.

Who should attend? 

Healthcare clinicians, professionals and others who support people with complex, rare diseases or multi-sensory impairments, such as CHARGE syndrome, or patients with gut and motility issues, CHD7 disorder, cranial nerve dysfunction, multi-system impairments, deafblindness.

View the Program

Speakers

The program features international and local speakers with extensive knowledge, skills and experience in CHARGE syndrome.

Meet the Speakers.

Accessibility

Platform interpreters (Auslan) will be provided (delegates to provide their own interpreters if accessing platform interpreters is challenging).

This event will be recorded but not live streamed. Registered ticket holders will have access to the recordings for 12 months.

 

More information and registration.