Rare Diseases NSW invites you to celebrate International Rare Disease Day 2025 at Sydney Children’s Hospital. Hear from leading researchers, clinicians, those with lived experience, and service providers at the forefront of rare disease care.
SPECIAL GUEST: RICK GUIDOTTI
Award-winning photographer Rick Guidotti, founder of Positive Exposure, will share his inspiring work celebrating human diversity and changing attitudes towards individuals with genetic, physical, behavioural, or intellectual differences.
EVENT HIGHLIGHTS
- Latest Research and Innovations: Presentations from leading researchers on cutting-edge advancements in rare disease care.
- Clinical Insights: Discussions by clinicians on best practices and new approaches in diagnosis and treatment.
- Patient and Family Support: Strategies and resources for supporting individuals and families affected by rare diseases.
- Genetic and Genomic Medicine: Insights into the role of genetics and genomics in understanding and treating rare diseases.
- Positive Exposure: Rick Guidotti will share his work on celebrating human diversity and changing societal attitudes towards individuals with differences.
WHO SHOULD ATTEND?
- Clinicians: Allied Health, Medical, and Nursing professionals.
- Students & Educators: Those studying or teaching in fields related to complex care needs, disability, diversity, chronic, and rare diseases.
- Scientists: Clinical and basic scientists engaged in translational research, interested in integrating human-centered frameworks and diversity considerations into their work.
- Anyone passionate about advancing rare disease care and promoting inclusivity in healthcare and research.
Don't miss this opportunity to learn, connect, and celebrate the richness of human diversity.
These events are funded by Rare Diseases NSW, UNSW Sydney, 22q Foundation Australia & New Zealand, and Genetics Alliance Australia