Rare Disease Project ECHO®: A New Era in Rare Disease Education

The rare disease community is abuzz with excitement as the Rare Disease Project ECHO® announces the launch of its new series of monthly, interactive webinars.

Rare Disease Project ECHO® is a collaboration between Rare Voices Australia, the Rare Care Centre, UNSW Sydney, and Rare Diseases NSW, and aims to provide practical advice and support for those caring for people living with rare diseases.

Starting on September 19th, 2024, these free webinars will feature expert presentations on a variety of topics, including mental health, genomics, culturally safe care, and clinical trials. Each session will be followed by a lively audience discussion, encouraging participants to engage and share their insights.

The Rare Disease Project ECHO® Clinical Community of Learning Practice is a continuing professional development (CPD) activity approved by the RACGP. It employs a ‘hub-and-spoke’ outreach model, connecting health providers (‘spokes’) to a multidisciplinary team with expertise in rare diseases (‘hub’). This model ensures that healthcare professionals across Australia can access valuable resources and support.

Webinar Details:

  • Format: Online via Zoom
  • Frequency: Once a month, on Thursday evenings
  • Content: Expert presentations followed by reflective discussions

Benefits of Joining the Rare Disease Project ECHO® Community:

  • Establishing referral pathways to rare disease experts across Australia
  • Supporting the diagnosis and management of rare diseases
  • Introducing resources for health professionals and their patients
  • Connecting to a multidisciplinary network of like-minded health professionals

Benefits of Joining the Rare Disease Project ECHO® Community:

  • Establishing referral pathways to rare disease experts across Australia
  • Supporting the diagnosis and management of rare diseases
  • Introducing resources for health professionals and their patients
  • Connecting to a multidisciplinary network of like-minded health professionals

Register now to be part of this groundbreaking initiative and join a community dedicated to improving the lives of rare disease patients and their families. For more information and to register, visit Rare Disease Project ECHO®.

Let’s come together to support rare disease patients and families through education, collaboration, and community.