Rare Disease Day 2026: Care, Connect, Cure

Care, Connect, Cure is a free, inaugural hybrid summit hosted by Rare Diseases NSW, Genetic Alliance Australia, and Belongside Families, bringing together researchers, clinicians, policymakers, industry, patient advocates, and families to advance rare disease care and research in NSW and beyond.

Over two days in Sydney with online participation available, the event will explore innovation across genomics, AI and digital health, advanced therapeutics, workforce capability, mental health, and culturally safe models of care. Grounded in lived experience and cutting-edge research, the program features keynote speakers, panels, interactive sessions, showcases, and a dedicated children and young people’s program.