The Rare Disease Project ECHO® Clinical Community of Learning Practice is a continuing professional development activity delivered via interactive webinars. The ‘hub-and-spoke’ outreach model connects health providers (‘spokes’) to a multidisciplinary team with expertise in rare disease (‘hub’).
The webinars start with a presentation on a specific topic from an expert. This is followed by reflective discussion, which all participants are encouraged to join.
The sessions are held online via Zoom on a Thursday evening once a month.
On Thursday 7th November 2024, the topic is Innovative Clinical Trials Access Models.
The webinar commences at 7pm AEDT / 6pm AEST / 6:30pm ACST / 4pm AWST.
Rare Disease Project ECHO® is a collaboration between Rare Voices Australia, UNSW Sydney, Rare Diseases NSW, and the Rare Care Centre, bringing together clinical, research and lived experience expertise.
Joining the Rare Disease Project ECHO® community can have many benefits, including:
- Establishing referral pathways across Australia to reach rare disease subject matter experts
- Supporting with the diagnosis and management of rare diseases
- Introducing resources for health professionals and their patients
- Connection to a multidisciplinary network of like-minded health professionals
Rare Disease Project ECHO® is an RACGP-approved continued professional development(CPD) activity. However, the sessions are valuable for all health professionals.